In Relation to Food

 

I’ve been thinking about food a lot the last few days.  Okay, let’s face it…I think about food a lot – every day!  But seriously, I came to the realization that I’ve had a very dysfunctional relationship with food for the majority of my adult life.

It began when I was 20 and in an abusive marriage.  My husband at the time, demanded perfection.  He used food as a punishment, a way to control me.  Every day of our married life he let me know I was overweight and inadequate in every possible way.  I weighed 110 pounds when we got married.  By Thanksgiving, nearly 3 months after our wedding, I was almost 9 weeks pregnant and weighed all of 97 pounds because of him limiting my food consumption.  In front of some of my co-workers, he angrily told me that I was, “fat, hideous and repulsive.”  A few days later, I miscarried the baby that I hadn’t even told my husband that I was carrying.  I didn’t realize until over 20years later that because of how malnourished and thin I was, I already had a small baby bump that early in my pregnancy which, I’m sure, added to his thoughts that I was fat.

When that marriage ended, I briefly dated a couple of really great guys – who just happened to all be cooks by trade.  Hmmmm.  The man I ended up marrying was a chef.  I didn’t consciously seek out men who cook, but you can’t tell me there wasn’t something under the surface that found that appealing. 

About 6 or 7 months after my second husband and I got married, I had gained some weight and was now up to 115 pounds.  I was actually at a healthy weight and was beginning to look healthy, too, yet I was horrified!  I was so afraid that my new husband was going to leave me because I was fat.  I struggled through our entire marriage with negative body image and my relationship with food was love/hate.  I loved food, but hated that I had gained weight.  I felt ugly and fat and my first husband’s words continued to taunt me no matter how much my second husband tried to reassure me that I looked good and that he thought I was beautiful.

A little less than a month before our fourth wedding anniversary, my second husband died from an aortic aneurysm.  I was 26 years old and utterly devastated.  My dysfunctional relationship with food intensified and morphed into something very ugly.  I would go days without eating because of my grief and then I would turn to food as my “drug of choice” to numb my grief.

I’ve never thought of me as having an eating disorder, but as I look back on it, I can see that I really did.  Not anything that I’ve ever heard a label for, but still not a healthy relationship with food or my mental health at all. 

Over the years my weight would balloon up to 186 pounds at my heaviest.  I sought comfort in food when I was sad or angry.  I would use food to celebrate or fill a void when I was bored.  I am definitely an emotional eater.  I would diet periodically, lose weight, just to feel empty and still inadequate, so I would turn back to my unhealthy eating habits. 

Then I learned that I had hypothyroidism, which makes it difficult for me to lose weight, among many other symptoms.  So, I had a built-in excuse for not losing weight without taking any responsibility for my own unhealthy choices and without changing my eating habits. 

I finally grew weary of feeling tired and having no energy and hating myself for the way I looked and felt.  I joined a weight-loss program and in around a year and a half, I lost 53 pounds and was finally back to a healthy weight.  Yet, I felt horrible!  I loved the way I looked, but I still had worsening symptoms that eventually led to me being diagnosed with Celiac Disease.  Before that diagnosis I was suffering from severe anxiety, chronic fatigue, almost constant upset stomach, bloating, aching joints and eventually, hives and periodic anaphylactic reactions.  For around three years my doctor worked to find a correct diagnosis and treatment but nothing was working.  I became afraid of food.  I didn’t know what was causing me to have these reactions and so all food became the enemy.  I began keeping a food diary to try to track when my symptoms would appear.  There didn’t seem to be any connection. 

Then I had an anaphylactic reaction so severe that I nearly died in the ambulance on the way to the hospital.  This led to my Celiac diagnosis.  Thus, my dysfunctional relationship with food took an unexpected turn.  When I was finally diagnosed with Celiac Disease, I had no idea what gluten was or what foods contained it.  I had to do the research on it myself.  I lost weight initially because I wasn’t eating much.  My anxiety was unbearably high.  The first year post diagnosis was such a struggle as I learned by trial and error.  Eating became a chore.  I had to eat to live, but it took a while to figure out what was safe for me to eat.  It was daunting and felt hopeless at times.

Once I finally figured things out, I went on the hunt for gluten free “replacements” for many of the foods that I’d had to give up for the rest of my life.  Most of the gluten free replacements were very unhealthy.  I felt deprived, so I wanted to fill that void – with more food.

Because of the nature of my disease, I have to think about food.  I have to constantly be on my guard to make sure that I don’t ingest gluten in any form.  It means that participating in special things such as events at work that include a meal, when a co-worker brings treats in for the office, wedding receptions, any kind of gathering where food is present can be difficult and awkward.  Even just getting together with family can be stressful because they can have all of this wonderful and delicious food and I’m stuck with a very limiting diet.  Most of the time, I’m ok with it and I’ve gotten used to it over the past 9 plus years.  Once in a while, though, it gets to me and makes me feel left out and separate from the rest.  It can honestly make me angry that I have this damn disease.  Again, it is my own personal, difficult relationship with food.  The dysfunction is just different than it was before this diagnosis.

What is the answer?  I wish I knew.  I am working to have a better relationship with food.  It is difficult, when you have to constantly be on your guard concerning food, to not let it consume you.  It can feel quite overwhelming at times.  The best I can do, the best anyone can do, is take it one day, one meal at a time.  I hope to one day have a healthy relationship with food.  That is the goal.  I know a big part of that is having a healthy relationship with my body image and learning to accept myself.

I am nothing, if not a work in progress.

Moving Forward

It's a new year and many people are making New Year's resolutions - or breaking them.  I've never really been one to make a New Year's resolution because they always seem to be something that sets you up to fail.  Everyone has BIG dreams of goals they want to set for themselves, yet, these goals seem to be tossed aside at the smallest stumble or if the results don't happen as quickly as we want them to.  

This was actually the message topic at my church this morning.  My pastor's new message series is a timely one called, "Habits".  This morning he spoke about why we fail at our resolutions or to set healthy habits.  Often, we dismiss our small good decisions as not mattering much.  The same with our small bad decisions.  The truth of the matter, as he pointed out, is that our lives are the sum total of ALL of the small decisions we make - good and bad.  If we don't see results right away, it can feel like it is never going to happen or that it takes too much work.

What I want to talk to you about today is about moving forward after a Celiac diagnosis or learning you have other health issues that would benefit from a gluten free diet.  What on Earth does any of that have to do with resolutions or habits, you may ask?  Good question.  One I plan to answer as I move forward (see what I did there) into the rest of the post.

1. DIAGNOSIS

The first thing that happens before anything else can is diagnosis.  If you think you may have Celiac Disease or someone else in your immediate family (parent, sibling or child) has been diagnosed, you need to get tested.  This includes blood test AND a confirming endoscopy.  It is possible to have a negative blood test and a positive endoscopy, so follow through is extremely important for correct diagnosis.  Note that you MUST still be consuming gluten until after your endoscopy.  This is vital for accurate results!  For more information about Celiac Disease, you can read a previous post of mine, What Is This Thing Called Celiac?

2. INFORMATION & EDUCATION

Once you've received a definitive diagnosis, you will need to live a 100% gluten free lifestyle.  There is so much to learn.  What is gluten?  How do I go gluten free?  What items are gluten found in?  If you're like I am, I went straight to a bookstore and then online.  I found a great book called, "The Gluten Free Bible", by Jax Peters Lowell.  She is a woman who has been living with Celiac Disease for a long time and has a lot of information in her book from the standpoint of someone who's been there and is living it every day!  For more great book resources, see my list at the end of this post.  On the internet, I found a ton of conflicting information.  It took me many months up to a year to really figure out which sources were reliable and which were not.  The biggest source I use as my go-to for information has been Beyond Celiac.  They have all kinds of information and great resources available and I highly recommend them as a great place to get started learning about Celiac Disease and being gluten free.  You can also read more in my post, Gluten Free 101.

3. GRIEF

This is one not many people talk about.  That was one of the things that I really appreciated about Jax Peters Lowell's book.  She states right out that you need to grieve.  Your life has just changed forever.  Your relationship with food has changed forever.  You have to say goodbye to so many favorites as well as convenience.  A couple of mine that still hurt to this day are KFC (Kentucky Fried Chicken) and REAL pizza!  I have yet to find a gluten free pizza that is as mouth-watering good as the pizza I've loved for most of my life from Godfather's, Pizza Hut, etc, though there are some delicious gf pizzas and recipes out there.  Not only does your relationship with food change, but, sad to say, some of your relationships may change, as well.  It's nobody's fault, it is just a lot to deal with.  YOU have to deal with it every moment of every day for the rest of your life, but those around you who don't have to be gluten free may get tired of your dietary needs dictating where you dine out or the fact that you may have to cancel at the last minute, plans that you've had for months because you're having a flare up.  It happens more than you would like - even if you are doing everything right.  Even as you are learning how to live with your new reality, you do need to allow yourself to grieve for everything you've lost, that you have to leave behind, and maybe even, in some cases, relationships that are never the same.  The important - critical thing about grieving is that you allow yourself time to grieve, but you don't stay there.

4. ACTION

Here's where the resolution and habits part comes in.  All the while after your diagnosis, as you are learning and even through your grieving stage, you need to take action in order to take back your health!  This means not only going gluten free, but learning to practice self-care in the forms of getting plenty of rest, staying hydrated, taking care of your spiritual health and making healthy choices all around.  The ONLY treatment option available (is that really an option, then?!) is to live 100% gluten free!  There is no medical treatment available - no pill or shot you can take.  You MUST be 100% gluten free.  This means you NEVER cheat!  If you cheat, even if you are asymptomatic (meaning you have no symptoms), you will still cause damage to the lining of your small intestines, which can, in turn, lead to other health issues, autoimmune disorders and even death.  This isn't like a weight-loss diet where if you cheat you just make an adjustment to the rest of your intake that day.  Just one small crumb of gluten can cause extensive damage to your intestinal lining.  It isn't worth it.  Many people have told me that they just couldn't go gluten free because they can't give up all of the foods they love.  When your health, your life depends on it, you can adjust to ANYTHING!  Don't fall into the pitfall that many newly diagnosed (including myself in the beginning) of seeking out gluten free versions of your favorite junk foods!  Like any "normal" food out there, the more processed, the more refined sugar, high sodium, etc. foods are the absolute worst things for you.  The same goes for processed gluten free products.  Be mindful of the ingredients you are putting into your body.  Remember, you are working to heal your gut and you need to create healthy new habits to aid in that healing with the goal of getting to remission (though, even in remission you can NOT go back to consuming gluten.  You are now gluten free for the rest of your life, even if you achieve remission, meaning the villi in the lining of your small intestine are healed).

5. ATTITUDE

Like anything else we go through in life, attitude makes a world of difference.  If you go into this with the attitude that this is too hard, I'll never make it - that is exactly what will happen.  Our attitude determines our success!  If you go into this with an attitude that you are going to work at it until it becomes second nature to you, you will succeed!  Your determination to stop feeling like crap and start feeling good for a change will spur you to keep with it, even if you don't begin to feel better immediately.  Everyone is different.  Different people heal differently.  Some people end up feeling worse before they eventually start to feel better.  Don't give up.  It is hard.  It can be painful.  It can be isolating.  BUT, that first day you realize that you actually feel good - completely well without fatigue, headache, body/joint aches or whatever symptoms you may have - you will realize that it has all been worth it.  That day won't be every day.  Flare ups happen and they can get discouraging.  Don't stay discouraged.  If you can go into this with a positive attitude and keep going back to that positive attitude even after discouraging setbacks, you'll make it through anything!

This is a new year, a new decade, a new chance for you to take control of your health.  It is doable!  I am living proof of that.  Yes, I still get sick - in fact I've been struggling with illness since Christmas Day and, though I am finally starting to feel better on January 5th, I'm still not fully recovered.  Even illness that is not Celiac related, like this current illness, can take longer recovery time because of my compromised immune system.  It happens.  It sucks!  BUT, I carry on, moving forward to become a healthier me.

Additional resources about living with Celiac Disease:

"The Gluten Free Bible" and other books by Jax Peters Lowell at https://jaxlowell.com/

"Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food Health Activism" by Nadine Grzeskowiak, RN and her informative podcasts at https://glutenfreern.com/podcasts/

"Jennifer's Way: My Journey With Celiac Disease--What Doctor's Don't Tell You and How You Can Learn to Live Again" by Jennifer Esposito.  She also has a wonderful gluten free cookbook out called, "Jennifer's Way Kitchen: Easy Allergen-Free, Anti-Inflammatory Recipes for a Delicious Life".  Check out Jennifer's podcast at https://www.chewthis.life/

Dealing with Flare Ups & What NOT to Say to the Chronically Ill

No matter how careful you are to make sure you avoid gluten and do things to try to be healthy, such as drinking lots of water, taking vitamin supplements and eating healthier, sometimes you still end up having a flare up.  Unfortunately, that is simply the nature of life with autoimmune disorders and chronic illness.  Sometimes there just isn't anything you can do to avoid it, no matter how hard you try.

Many things can affect and trigger a flare up.  Things such as changing seasons, stress, illness such as a cold or the flu, time change, unexpected life changes, etc.

This year has been a very difficult and painful year for me and my family, as we've gone through many large and unwelcome transitions.  Since the beginning of August, we lost my grandmother, then my father-in-law only a month later.  Pressures and changes at work for both my husband and I have brought us not only high stress levels, but uncertainty about our future.  With the onset of Autumn came seasonal colds, flu and other illnesses that we've been exposed to out and about.  So many things can trigger a symptom flare up.  These triggers, as well as the symptoms, can be vastly different in different people.  I'm currently suffering through a flare up.  I haven't been glutened (always my husband's first question) and I have been taking my vitamin supplements (his standard second question), yet I am in the middle of a flare up.  The simplest task leaves me feeling completely physically, mentally and emotionally exhausted.  I have been in the bathroom far too much for comfort over the past couple of days with diarrhea and upset stomach.  My head is pounding and, quite honestly, I can barely keep my eyes open to write this post.  My thoughts feel jumbled and, at times, I struggle to find the right word (I swear it is RIGHT on the tip of my tongue!).  My eczema on my arms and behind my ears is aggravated and I just want to crawl under the covers and not come out until Spring arrives!

How do I deal with a flare up like this one?  I'm so glad you asked!  First, know that there is NO magic cure or quick recovery treatment.  Your body has to take as much time as it needs to get over the flare.  However, there are some things you can do to help your body along and make it a little easier for yourself.

1. Stay hydrated!  I sometimes have a hard time with this one, though it is always something I will stress to other people.  It is so important to stay hydrated!!  It will help you replenish your body and will give you more energy (don't laugh - I can hear you now..."Energy?  What is that?!")  I know that seems like a foreign concept to those who are chronically ill because sometimes just the effort of getting out of bed can take every ounce of energy you may have.  But, staying hydrated will boost your energy level, even if it is just a little bit.  After all, every little bit counts when you have chronic illness.  Hydration also helps to lessen or eliminate muscle cramps and spasms.  When I have a flare up, one of my symptoms that gets worse is muscle spasms in my right arm.  I generally have some every day, but usually they are minor and don't cause me pain.  When I have a flare up, however, the spasms are hard and can really cripple up my arm for a time.

2. Allow your body to rest.  Sometimes it can feel like all you are doing is resting.  My work week gets to be long and by the time the weekend comes around I am usually done in.  It is difficult to accomplish things I need to around the house.  I'm learning that I need to do small tasks and take breaks frequently to help prevent from becoming severely drained and unable to function.  When your body is telling you it needs a break - LISTEN to it and obey!  You are not being lazy, you are simply giving your body what it needs.  I know that sleep can be difficult to come by when you are having a flare up due to insomnia or body aches or multiple trips to the bathroom because of gut issues.  Yes, our bodies require sleep.  It is exceedingly vital.  However, I am talking here about resting.  Sit down, lay down, whatever you need to do to allow your body and mind some down time.  For instance, I am writing this post on my laptop while in bed because I don't even have the energy to sit at my desk.  

3. Eat foods that aid in lowering inflammation.  Some good anti-inflammatory foods are bone broth, fish for Omega-3 fatty acids which can aid many health issues, fruits such as pineapple and blueberries, green tea and even dark chocolate.  I know women everywhere are cheering for that last one!  You can research anti-inflammatory foods online.  A really great and informative post about anti-inflammatory foods can be found here.

4. Take a probiotic and vitamin supplements - research to be sure they are gluten free.  My doctor advised me to take a probiotic that is at least 30 billion live cultures per serving.  In my own research I have found that it is generally advised that someone with chronic illness should take at least 50 billion live cultures or more per serving to get the most benefit from it.  To learn more about probiotics and what they do, check out this article.  My doctor also advised me to take prenatal vitamins, though I am well past the age of being able to get pregnant.  He told me that because I have multiple vitamin deficiencies, a prenatal vitamin would benefit me the most.

Now, for those who are not chronically ill, but have someone in your life who is...please never, ever, EVER say any of the following to that person or anyone who suffers from chronic illness:

5. I wish I could just lay around all day and do nothing.

4. Now that you know what is wrong with your health you shouldn't be getting sick anymore, right?

3. You're lucky.  I'd love to be sick just long enough to lose those few extra pounds I've gained.

2. No one could be sick that much, you must be faking it!

1. But you don't look sick!

On any given day, someone living with chronic illness has to push through the pain, fatigue, brain fog, anxiety and more just to attempt to function as if they were a healthy person.  You have no idea how much energy it takes to pretend NOT to be sick!  Just because we are at work, grocery shopping, doing laundry, attending events, do not mistakenly think that we aren't suffering.  We've just become very adept at keeping our suffering hidden.  We aren't trying to get attention.  It may come as a surprise to you, but we don't enjoy being the center of attention due to our health conditions.  We don't want your pity, your scoffing, your disbelief.  We need your patience, compassion and understanding.  What we are going through is difficult, can be isolating and it is an every day battle.  EVERY. DAY.  It will never go away.  This is our life.  For the rest of our lives.

Surviving the Holidays When You are Gluten Free

It is a very brisk Autumn day here in Iowa.  With the arrival of November, the holiday season is fast approaching.  It seems that especially this time of year can get very discouraging and frustrating for those of us who have to be gluten free due to Celiac Disease or other health issues that require a gluten free lifestyle.  Here are some ways I have found to survive the holidays being gluten free.  (read all the way to the end for the Giveaway Winner announcement!)

Just because we are gluten free doesn't mean we can't enjoy ourselves along with our family, friends and co-workers at holiday get-togethers and events!  One thing I learned during my first holiday season after my Celiac diagnosis is not to expect others to cater to my dietary needs.  It isn't fair to them and you will only be disappointed and probably end up sick.  I try really hard not to call attention to my being gluten free other than when I have to.  I have never enjoyed being the focus of attention and this is no exception.  My sister-in-law, having the most space in her home, always graciously hosts the family gatherings for Thanksgiving and Christmas.  We do it potluck style, with everyone bringing something for the meal.  At Thanksgiving, I completely prepare an entire Thanksgiving meal for myself at home, including the turkey (even with meat, you have to watch to see if anything was added to make sure it is safe for consumption when you have to be gluten free).  Yes, my sister-in-law and her husband usually make a turkey, but I don't mind making my own, as well.  I can control what I am getting and I know exactly what has been used in preparing it and my husband and I have left-overs that we wouldn't if I didn't make my own.  My sister-in-law usually provides potatoes, so I don't make those, though I do make my own gluten free gravy and stuffing at home and take just what I need for myself.  Actually, I end up taking a little bit more, as well, because my mom likes to try the gluten free foods I make, even though she doesn't have to be gluten free.  I always try to make a gluten free desert to share with everyone there and on Black Friday - otherwise known as Iowa Hawkeye Game Day to our family, I always bring a snack that everyone can enjoy (including me).  A favorite that is requested of me each year is my spinach, artichoke dip.  Yum!  The nice thing about making my own meal that is safe for me to eat is that, anymore, it is just commonplace and no one thinks anything of it.  I am not the center of attention because of my limitations and I get to enjoy delicious, gluten free foods that I know are perfectly safe.

On my dad's side of the family, there are quite a few of us living with Celiac Disease or non-Celiac Gluten Sensitivity, so there are always plenty of delicious gluten free options at these family gatherings!  And, we don't have to worry about cross-contact because everything is labeled with separate utensils and kept away from the gluten-full foods.  While it is sad that so many of us have to avoid gluten on this side of the family, it also feels like I can just enjoy a normal family gathering because I'm not alone.

There are many things you can do to be safe and yet still be a part of the festivities.  Eating ahead of time can help and then just enjoy a glass of wine or a hot cider and good conversation with everyone else at the event, or bring your own food.  The first couple of years after my diagnosis I found kind of depressing as I focused on all of the things I couldn't have instead of focusing on just being with family and friends and enjoying the moment.  Concentrate on the joy and fun of the event and don't let what you can't have get you down.  Be thankful that you know what has caused your health issues and that you are in control as much as you can be.  

At any event where you bring your own food or, if catered and the caterer will provide a gluten free meal for you, there may be some people who ask you questions about your health and about being gluten free.  I've learned to give short, but accurate answers to these questions unless someone really is interested in learning more about Celiac Disease and being gluten free.  Many people, while curious, don't want to know the entire history of gluten, Celiac Disease, etc.  Most are asking to be polite.  Generally, I try to give a short answer and then turn the topic of conversation to something else that everyone can participate in.  That way, I'm not on the spot and the conversation doesn't become all about me and my health issues.  I want to enjoy the festivities as much as the next person.

The holidays can be very intimidating and isolating if you let them.  For me, being able to prepare and take my own food to get-togethers cuts out the intimidation factor and keeps me from being isolated.  I can say yes and attend and be a part of the event and know that I am safe because I've prepared my own meal.  Even though most holiday events center around food, remember that there is so much more to enjoy about life than just the food!  After all, the best things in life are free (gluten free, that is!).  Take a moment this holiday season to really notice and appreciate all of the naturally gluten free things in your life.  Some of my favorites are the sound of children laughing, joyful holiday music, the colorful Autumn leaves, warm sweaters, snuggling with my favorite someone - there are so many beautiful things in this life that have nothing to do with food, but are naturally gluten free.  Enjoy them this holiday season!

Now for the winner of the Autumn Giveaway co-sponsored with my friend, Kallie at S2 Soaps...

ANDREA KESSLER @skessler28

Congratulations, Andrea!!

Learning Self-Care to Enjoy a Better Life

When I first heard the term “self-care” many years ago, it didn’t quite compute.  If you’re like me, when I was growing up, I was taught to take care of others before my own needs.  It is something that is completely engrained in me and is second nature after more than 50 years of being alive.  I’ve always worked hard to follow that in my own life, sometimes to my own detriment.  I’ve always believed, wrongfully so, that my own needs are always secondary and if I am taking care of myself, I am being selfish.  Just like everything else in life, this area requires balance.  That balance has been and often, still is difficult for me to find.  Yet, self-care is so vitally important to our well-being.  I mean, if you don’t take care of yourself, how can you possibly take care of anyone else?

Anyone who has ever flown has sat through the instructions from the flight attendants prior to take off.  One of the most important instructions they always give is about the oxygen masks that will pop down from the overhead compartment in case of loss of cabin pressure.  What is it they always, without fail instruct the passengers to do?  Put the mask on YOURSELF before helping any small children or incapacitated person near you.  That is because if you lose consciousness, you are incapable of coming to someone else’s aid.  In other words, if you don’t take care of yourself first, not only will you suffer, but so will those around you.  Self-care is important to everyone, but especially those of us living with autoimmune disorders and chronic health issues.  Our bodies require more self-care than most in order to be able to function at any given time.

So, what does self-care look like?  I imagine it can mean many different things to many different people.  Here are some things I’ve learned about self-care along my own journey.

1.      Learn and abide by your limitations

That doesn’t mean, let your limitations keep you from living your life as fully as you can or to use your limitations as excuses to keep from doing things.  It just means that we need to listen to our bodies.  No one else knows your body like you do.  You know what activities require extra energy from you and what activities wear you down.  In my own case, I have learned that I cannot plan multiple activities for the same day or even just one all-day activity.  My body rebels against me when I expect too much from it.  I need to honor that by planning accordingly and resting when necessary.  Yep, it means that often I have to say no to activities and events that I would LOVE to take part in.  But sometimes self-care simply means saying no.  It is ok to say no.  It is not the end of the world.  And it doesn’t mean that you always have to say no.  If I say no to things that I know will prove to be too much for my body to handle, that opens up opportunities for me to say yes to other things I may not have been able to do before.

2.      Get plenty of rest

All of us need rest.  Those of us with chronic illness or autoimmune disorders require more than normal.  Honor that.  Yes, we need to get plenty of sleep at night.  Each person’s needs may be different on how much their body actually requires versus someone else’s needs.  Sleep is not the only form of resting.  Down time, just kicking back with no activities and taking time to relax for a while helps to recharge your body, as well.  My favorite way to relax is to grab a cup of hot tea and a good book and just lounge and read.  I have so many people tell me that they don’t have time to do sit and read.  I understand that.  The busyness of life gets to us all at times.  This is an area of your life where you need to make time.  Carve out in your schedule a little bit of “me” time to sit and relax and rest your body and mind for a little while. 

3.      Hydration & healthy eating habits

Again, this is a vital part of life.  I have a bad habit of drinking one soda per day.  I love the carbonation.  But even one per day is so unhealthy for my body.  And, I’ve begun to notice different things about my body when I drink soda instead of water.  I get more muscle cramps, my joints feel swollen and achy, I end up feeling sluggish and fatigued throughout the day.  When I am drinking plenty of water, I have found that I have more energy, I feel more focused throughout the day and the muscle cramps and swollen and achy joints are no longer an issue.  Making healthy choices for our meals is exceedingly important as well.  I love the summer and all of the fresh fruits, veggies and herbs I can purchase at the local farmer’s market!  When I was first diagnosed, my first response as I was learning to live gluten free was to purchase and consume the gluten free counterparts to what I used to enjoy prior to my Celiac diagnosis.  Sadly, most of that was crap!  The more processed the foods are, the less good they do for your body.  The more you can stick with less processed, more naturally gluten free foods, the better off you will be.  You will feel more energetic and be healthier overall.

4.      Spiritual health

My current personal Bible study is,  "Beautiful Brokenness "

I know this can take many different forms for many different people.  We are, at our core, spiritual beings.  For me, being a part of a church family helps me find my purpose, my joy.  I work as part of the worship and service team most Sundays and I love it!  It has grown me so much as a person to be a part of this great team and to be an active member of this church family.  My time on Sundays as well as the small group Bible study that I help facilitate really help me rejuvenate for each week.  The times that I have to miss for one reason or another, I can feel it down deep in my soul and I feel emptier and miss it so much.  Being plugged in to this church family feeds my spirit in ways nothing else I have found ever has.  Taking time during the week for my own personal prayer time and Bible study just adds to that fullness.  I have dear friends who take care of their spiritual health through yoga and meditation.  Others I know actually feed their spiritual beings through their art.  Whatever form it may take, setting aside time to care for your spiritual self is also very important

5.      Make time to do activities you enjoy

One of my favorite passions and hobbies, photography. 

This photo is two things that relax me, crocheting and snuggling with my kitties. 

This past year has not been a good one for me and my family.  While there have been some very good and enjoyable things about the year, there have been a lot of hardships and some big, painful losses that have really disrupted our world.  For most of the year, the activities that have always given me pleasure have taken a backseat and been set aside.  Some of these activities help keep me centered.  Since I was a young girl I have found release through art and writing.  Even if the only person who will ever see my drawings or paintings or read what I’ve written is me, it is still a way for me to get in touch with my innermost being.  I also enjoy photography.  We have to make time for the things we enjoy as well as those responsibilities we all have.  We aren’t meant to go through life just doing a job.  Yes, we need to work in order to make money to be able to pay for the necessities and extras, but we need to find hobbies that we enjoy, too.

6.       Take time for something silly and fun once in a while

Me with my cousins, Amy & Lori Ann taking some time for fun and just being together a couple of days after our grandma's funeral. 

At our last meeting of the Western Iowa Celiac & Gluten Free Living group, I passed out some little gifts.  Inside each pouch was a small notebook, a pen, a trinket reminding each person to never give up and a small bottle of blowing bubbles.  Yes, the bubbles may seem silly, but it symbolizes to me the simple joys we tend to forget about and set aside as adults.  I, personally, have fun blowing bubbles.  It requires very little from you and you can’t help but laugh and smile while you are doing it.  I’ve found that doing something fun helps ease away the tension and stresses of life.

Is anyone wondering what the small notebooks and pens in the pouches were for?  They were for each person to write down ideas in their own lives for how they can practice self-care.  So, now that you know what self-care looks like to me, tell me how you practice self-care in your own life.

Until next week, be well and be happy.

Raise Awareness Not Tempers

After a brief hiatus, I'm back and ready to get back into the swing of things full force!  Recently I've seen several posts from people who are angry and frustrated with what they call incompetent doctors who misdiagnose or failed to diagnose for too long a period of time before they finally got a correct diagnosis of Celiac Disease. It does on average take anywhere up to 10 years sometimes to get a correct Celiac diagnosis because this is simply not the first thing doctors necessarily consider.  While I fully understand their frustrations, I prefer to take a more practical and logical view of this.

One, I am not an angry or negative person by nature.  I tend to find the positive in even the dimmest, darkest situation.  I think becoming angry about supposed doctor incompetence is counterproductive.  Please remember that there are over 300 hundred possible known symptoms of Celiac Disease, many of which, mimic other health disorders.  For a fairly comprehensive list of the known Celiac symptoms click here. 

Over my life I have presented with 73 varying, chronic symptoms, many of which could also be attributed to my hypothyroidism.  Symptoms for Celiac Disease range anywhere from IBS type symptoms, severe bloating, skin issues, brittle nails, dental problems, brain fog, anxiety, insomnia, paranoia, achy, swollen joints, other health disorders and autoimmune diseases, and in extreme cases anaphylaxis.  If taken separately, each of my 73 symptoms could potentially lead to 73 very different diagnoses.  In fact, it took my doctor 3 years to finally test me for Celiac Disease.  It wasn't because he was incompetent.  On the contrary.  He was searching for answers to my most pressing symptoms, which appeared to be allergies of some kind.  It wasn't until I nearly died from a severe anaphylactic attack that he reviewed my entire medical history and put all of my symptoms together to consider to test me for Celiac Disease.  He worked so hard with various tests and treatments to try to find the right answer.  We were both looking at only the most recent and severest symptoms instead of the whole picture.  Which is logical that a doctor would do that! 

There is no medical treatment or cure for Celiac Disease.  Unless a doctor is a specialist in this area, Celiac Disease is not going to be the first diagnosis on his or her mind.  Again, with such a huge variety of symptoms, many of which have absolutely nothing to do with the gut, it is no wonder that so many people are misdiagnosed, often multiple times, before finally getting the correct diagnosis.  The key isn't to get angry, but to educate!  My doctor doesn't know a lot about Celiac Disease.  He can't treat me medically for it, so he has actually learned a bit more about it from me through the past few years.  I love that he asks me questions about it and that he listens to what I have to say.  He is a general practitioner, not a specialist in Celiac Disease.  And, he is a very good doctor, whom I still see for my overall health and wellbeing.  

Yes, it is very frustrating how long it takes to get a correct diagnosis - if you ever do!  Believe me, I was extremely frustrated, too!  I've never blamed my doctor, though or believed he wasn't doing all he could to find an answer.  The more we can educate people and raise awareness of Celiac Disease, what it is, what the symptoms are and what it truly means to live gluten free, hopefully, the better doctors will get at recognizing and diagnosing Celiac Disease more quickly.  Admittedly, I was frustrated several months after my diagnosis via blood tests and going gluten free to learn that I should have had a confirming endoscopy.  This is where gently educating our medical professionals comes in handy.  My doctor didn't know that I should have had an endoscopy.  He knew which blood tests to order for diagnosis that way, but when I asked if there were any other tests that I needed, he told me no.  This disease is simply one that most doctors have little to no experience with.  If your doctor is open to it, sit with him or her and discuss your disease with them.  Let them know about it, what it is like to live with it, what it means to be gluten free.  I feel fortunate that my doctor is truly interested in what I have to say about it.  He knows I've done my research.  He knows I want to do whatever I can to get healthy.  And he knows it is important for him to know more about it.  Maybe, because of my history and diagnosis, he may recognize symptoms in someone else and be able to diagnose them sooner.

This is one of the biggest reasons I began this blog, am co-leader of my local Celiac and Gluten Free support group and recently built a new website - to help educate and raise awareness.  What can you do to help raise awareness for Celiac Disease in a positive and proactive manner?

For more resources visit:
https://www.beyondceliac.org/
https://celiac.org/
https://westerniowaceliacandglutenfreeliving.com/