2018 Iowa Celiac Conference

On Sept 29th, my mom, Edie and Siouxland Celiac Group co-leader, Susie and I attended the 2018 Iowa Celiac Conference in Marion, Iowa. It was a small conference, but we were happy to get to meet and mingle with other Celiacs from not only Iowa, but even LaCrosse, WI and Ohio. We arrived Friday evening, checked into our room at the Microtel Inn and Suites in Marion and then decided on a destination for supper. The pamphlet about the conference listed several restaurant options that offer gluten free menus. We selected Biaggi's Ristorante Italiano. Oh my! Were we ever glad we chose to eat there! The food was amazing and neither Susie or I had to ask many questions of our server, as she was very knowledgeable and gave us all of the information we needed up front once she found out that we were gluten free for health reasons before we could even ask. My mom, who does not have Celiac Disease and doesn't have to eat gluten free had her pick of what she wanted out of the regular bread basket, while Susie and I each enjoyed a gluten free flatbread that was prepared to order for us. I was nice and shared a piece of mine with my mom, who is always game to try any of my gluten free food! The meals were huge and we each ended up taking a to-go box home with us.

My mom, Edie, me (Margo) and Susie outside of Biaggi's

Mom (Edie) and Susie by the fireplace.  Mom's steak and fries can be seen in this photo.

This picture doesn't do this amazing gluten free flatbread, which we dipped in EVVO and grated Parmesan, justice

Both Susie and I ordered this amazing sea food and gluten free pasta dish

There were only three vendors at the conference, which, Jill (one of the event's organizers) said is the fewest they've had. She told us that there were initially more who were going to be there, but didn't show up. That was disappointing, but it was still a great experience and I did check out the three vendors who were there and bought some items from one of them.

There were three speakers. The first was Dr Hilary Jericho who is the Assistant Professor of Pediatrics and Director of Pediatric Clinical Research at the University of Chicago's Celiac Disease Center. She brought us the latest on Celiac standards for testing and research. A lot of the information she provided was stuff that both Susie and I already knew, having both lived with Celiac for several years now, but it was still interesting and informative.

Judy Fitzgibbons spoke next. She has been a registered dietitian for more than 40 years and has worked for the past 15 years as the in-store dietitian for Hy-Vee in Cedar Rapids. She gave us information on Gluten Free labeling laws and what to look for as well as what to avoid. Susie and I were able to speak with her for a few minutes as the conference was wrapping up.

Our last speaker was Kristen Richardson, a Psychiatric Nurse Practitioner who created a Holistic Mental Health Care Private Practice in 2005. She led a thought-provoking discussion on the emotional side of Celiac Disease. Kristen gave us a fresh perspective on things, as well. So often it is easy for us, as Celiacs, to get our feelings hurt by well-meaning people who say or do the wrong thing. We often feel like they are being mean or purposefully disrespectful of what we have to live with. Kristen pointed out their point of view. They don't live with Celiac Disease, so it is difficult for them to understand what we go through. Each person looks at things through their own scope of experience. So, people who don't have Celiac tend to look at it through what their experiences with illness or possible food issues have been. They aren't purposefully, in most cases, trying to not include us or say or do ignorant things. They just don't have the experiences we do. It's funny because I've said many times that having Celiac Disease has made me more compassionate and understanding toward other people facing health issues. I haven't thought about the fact that other people also need to be treated with compassion and understanding, not just those of us facing chronic health problems. My mom spoke a little bit with Kristen after her portion of the conference.

We also listened to a panel discussion on Growing Up Celiac. Two school aged girls spoke about their experiences being kids with Celiac and their parents spoke about what they have to do each year in order for their kids to be kept safe from gluten at school. I hope to have a future post that will include first-hand experiences from a couple of young school aged girls that I know and from their mom.

Susie and I spoke with Betty and Jill, the two event organizers. These ladies lead the Waverly, Iowa Celiac Group. They didn't even know there was still a group on our side of the state. Jill explained that there used to be several Celiac Groups in the Western Iowa area, but one by one, they ended up folding. They were very happy to hear about our group and the hopes we have for expanding the reach of our group to help a greater area on the Western side of the state. Jill was able to share some tips and encouragement with me and Susie and she and Betty even suggested that maybe we would be able to have the 2020 Iowa Celiac Conference in Sioux City! Both Susie and I were stunned at that! There is a lot we would have to do in order to accomplish this, but I believe it can be done. Note - this is not something that is set in stone yet. It is something we are looking into and will work with the larger group in hopes of seeing this happen. I will keep you up to date with information as planning forges ahead.

The gentleman we met from LaCrosse, WI shared with us their group's newsletter and I mentioned something about the possibility of our group starting a quarterly newsletter to help keep our people informed. Jill told us that any Celiac Awareness or group activities/events that we hold could be included in the state newsletter, as well, so that our reach can touch many people throughout the state of Iowa!! They had little samples of several recipes included in this cookbook that they had put together years ago. This is actually the second edition. It sounds as if a third edition is soon to go to press! I was happy not only to taste the samples, but to buy a cookbook for myself. I also picked one up to include as a giveaway prize at the November meeting of our local Celiac Group!!

Okay, this post has gotten really long. It has been a long time since I've written much, so I may have gotten a bit carried away. It has been fun sharing with you our experiences from the conference..

Susie, me (Margo) and Edie (my mom)

What's been happening in my world...

I'm going to go back a few months and fill you in on part of what has kept me away from writing recently.  On Sunday's post that you can read here, I explained the self doubt and fear that has kept me away from writing.  While that has been the main issue, I have also been quite busy!

Our local Hy-Vee Foodstore had been sponsoring and facilitating our group for many years.  I wrote about the night I stumbled onto the group and then became a regular attendee.  You can read about it here in my Celiacs Unite! post.  

As 2017 was nearing its end, the Hy-Vee dietitian who had been leading the group, Corrinna, took a job in another state.  At that time, another local Hy-Vee dietitian, Tessa, stepped up and offered to facilitate the group.  Unfortunately, this was right as the winter weather started to get messy and that didn't make it easy for Tessa to keep the group going.  By May, 2018, she had also taken a different job and would no longer be able to facilitate our group.  Without a leader, I quickly contacted the other regular attendees of the group to see what their thoughts were.  We all agreed that we wanted to keep the group going, that it was important and that we wanted to extend our reach to other Celiacs and anyone else who was gluten free for health reasons who lived even beyond our local Sioux City area.  At this time, leadership fell to me and my friend, Susie.  We worked hard to pull together our first meeting, which was a gluten free potluck picnic in July.

Throughout the summer, Susie and I have taken turns helping our friend, Tina, owner and baker at Better For You Bakery as she has brought her gluten free baked goods to the Sioux City Farmer's Market.  In addition to helping Tina sell her amazing GF treats and mixes, we've also passed out pamphlets and info about Celiac Disease and have met and talked to a lot of people about the disease as well as about our group.  It has been so interesting to listen to other people talk about their experiences with Celiac Disease.  Some have been living with the disease for many years, while others we met were more recently diagnosed.  I was amazed at how many people told me that they thought they were the only person in the area with Celiac and had no idea there was a support group.  FYI - Tina and I will be at the Sioux City Farmer's Market this coming Saturday, Oct. 13th.  It is the Fall Festival and kids are invited to come in costume, trick or treat and participate in various activities, including a costume competition.  Along with her yummy gluten free baked goods and mixes that will be for sale, Tina and I will be passing out treats, including non-edible treats in participation with the Teal Pumpkin Project.  I will have information available regarding the Teal Pumpkin Project as well as information about Celiac Disease and our group.

l to r: Brenda (formerly of Gud n Free), her daughter, Alyssa, me (Margo), Susie (used to work for Gud n Free & my co-leader), Brenda's daughter, Ava and Tina (of Better For You Bakery)

As you can see, it has been a very busy summer!  Besides helping Tina out at the Farmer's Market, Susie and I have been planning and facilitating monthly meetings for the Siouxland Celiac Support Group.  We've been thrilled to have returning members and welcome some new members to our monthly meetings.  We have also created a Facebook Group to be able to stay in contact with one another between the in person meetings.  It is a way to share ideas, recipes, support and encourage one another throughout the month.  You can join the Facebook Group by searching for Siouxland Celiac Group.  This is a closed group to protect the privacy of its members.  To join, you simply need to answer a couple of questions regarding if you have Celiac Disease or another health issue that is aided by a gluten free diet and then Susie or I will approve your addition to the group.

Susie and I have also been fortunate to be able to connect with other Celiac groups across the state of Iowa and, with my mom joining us, even attended the 2018 Iowa Celiac Conference on Sept 29th.  Check out my next blog post for more information about the conference.

Our dream to be able to help many other Celiacs via social media and our local group is taking shape.  With hard work and persistence, I know that we will be able to support and encourage many others living the gluten free life for health reasons as well as raise awareness for Celiac Disease.

To Blog or Not To Blog

The last few weeks I've struggled with doubts about myself and whether my voice makes a difference.  I started this blog in 2014 at the suggestion and encouragement of a friend from church.  She said that I could help others by sharing my experiences and what I've learned since my Celiac diagnosis.

I've worried that this blog and what I've been doing with my local support group (more on this topic to come later this week) hasn't really reached or helped anyone.  It's so hard to know if you're making a difference when you receive little to no feedback.  Are people actually reading my posts?  Are my posts helping anyone at all?

Anyone who knows me knows that faith is an extremely important part of my life.  Today, the message my pastor gave at church hit home in a big way with me.  It was about getting rid of the toxic thoughts that can cripple us, make us feel worthless, stop us from moving forward and doing what we are called to do.

WOW!  WOW!  WOW!  I needed this so badly!!  I've been feeling like I've been failing to help others.  Wondering who would listen to or even want to hear what I have to say.  See what I did there?!  I made it all about me!  That right there is a HUGE part of my problem!!  I didn't begin this blog, become Siouxland Celiac for myself.  I did it to help others, to raise awareness and to be an encouragement and support to others living with Celiac and other non-Celiac related health issues that require people to be gluten free.

When I began to focus on myself - all I could see were my own shortcomings.  I let toxic and stinkin' thinkin' derail me from what I was trying to do.  These toxic thoughts created crippling doubt and fear in me.

Today's message helped to wake me up and shake off those toxic thoughts and to remember why I write this blog, am a part of my local support group and post via multiple social media outlets.  It is for YOU!!!  Because YOU are important!  What you are going through is real, can be scary and overwhelming and no one should have to feel all alone in this!

So, here am I - in all of my imperfections - saying that I'm here for you.  I'm not here so that you can support me, but I want to be support for you, share information with you and offer encouragement that you are not in this alone.  As long as even one person needs me and can benefit from what I have to say, I will continue to write.  

Food is Medicine

If you are living with Celiac Disease or other health issues that require you to be gluten free then I know you've felt that pinch on the pocketbook.  It is true that the majority of gluten free foods carry a higher price tag than their gluten full counterparts.  I hear and read complaints about this price differential a lot!  When I was first diagnosed I know I complained, as well.  I mean, I'm sure we can all identify with this cartoon someone posted in a Celiac Support Group I am in on Facebook earlier today.

Have you ever stopped to consider just exactly WHY the prices of gluten free products are higher than other products? 

Now, don't get me wrong.  I HATE living with Celiac Disease.  I wouldn't wish this autoimmune disease on anyone.  However, let's look at this logically, shall we?  There is currently no medical treatment for Celiac Disease.  None.  Zip.  Zero.  The absolute ONLY treatment option for those of us with Celiac Disease is a 100% gluten free life.  This isn't just about diet, but EVERY aspect of our lives from our beauty items, bath soaps, shampoos, toothpaste, household cleaners, and the list goes on and on and on.  Right?!  That can be extremely daunting and discouraging.  It can be extremely isolating at times and means there is a whole lot out there that we can't enjoy or events we cannot participate in.  BUT - on the flip side, our food is our medicine!  How about that?! 

You don't have to rely on medications that break the bank and come with a plethora of possible horrible side effects!  YOU are in the driver's seat.  YOU get to decide what foods to eat, whether to chance eating out or to just say no.  Big Pharma isn't calling the shots - YOU are!  Compared to the price of pharmaceuticals, eating gluten free is cheap!!  Seriously!  I'll pay extra at the grocery store any day to be able to be in control of my health instead of Big Pharma!

One of my favorite places to shop is our local Farmer's Market.  The local fresh produce there is delicious and naturally gluten free.  Yep, you know it.  Fresh produce is more expensive than many manufactured foods.  BUT - they are all natural with no additives or preservatives.  They contain zero MSG.  They are healthy for almost EVERYONE (unless you have a food allergy) not just those of us living gluten free.  And, yes, farmer's market produce is generally higher priced than your supermarket produce.  BUT - the produce is fresher and more often than not, tastes better, too!

No matter how careful we are, we all know that we can still accidentally come into contact with gluten.  It's everywhere so it is impossible to avoid cross contamination 100% of the time, unfortunately.  Yes, our food is more expensive.  Yes, I do believe there are some food manufacturers out there just to make a buck off of the gluten free fad and they don't take our needs seriously.  But I also believe that those people and businesses don't truly care about their customers or about doing gluten free right.  There are so many gluten free food producers out there who ARE doing it right because they care about their clientele and want to provide the best and safest possible products for them.  We have several here in the Midwest who are doing it right and taking every step necessary to ensure the safety and quality of their products.

Did you know that it costs more to produce gluten free products than regular products?  Because it takes more ingredients to make up for the lack of gluten in these products, the cost is higher to the manufacturer than it would be if they were using ingredients containing gluten.  Add to that safety standards it takes to manufacture gluten free products in a safe environment.  Gluten free food producers also have to comply with strict FDA requirements and pay for testing to ensure that their products are safe for our consumption.  Our disease puts us in a highly specialized market.  Since the cost to the manufacturer is higher, the price we pay at the supermarket is higher, as well. 

There are many gluten free products and foods that I use on a regular basis.  Many of them are from local producers, as I feel very strongly in supporting the local producers who work so hard to provide safe, delicious food for their customers.  Some local producers I buy from regularly are Chebe which is manufactured in Spirit Lake, Iowa, Mama Stoens from Owatonna, Minnesota and Better For You Bakery located in Jefferson, Iowa.  Each of these manufacturers produce gluten free baking mixes that are easy to prepare and tasty. 

Better For You Bakery French Bread mix

I've been dreading the writing of this part of my post.  Dreading it because it makes me sad every time I think about it.  Another amazing local gluten free food producer we have in Sioux City, Iowa is the 100% gluten free, nut free, fish free establishment, Gud n Free.  This restaurant was opened by owners Mike and Brenda Orlando not quite two years ago as a safe haven for those of us who have to eat gluten free.  This is the only restaurant in the area like this. 

Owner, Mike Orlando waits on customers this past Friday the 13th

I am so sad to say they will soon be closing their doors.  April 28, 2018 will be their last day in business.  While they've had many patrons come from many other states to enjoy the wonderful gluten free comfort food they provide, unfortunately, they did not receive enough support from the local Celiac and gluten free community.  This continues to boggle my mind.  Many people would prefer taking their chances on cross contamination at other restaurants that offer a few gluten free options on their otherwise gluten filled menus.  We've had such a gift in Gud n Free and it breaks my heart to see them go.  

Gud n Free Chicken Parm Sandwich with Steak Fries and their original marinara

Gud n Free's Bacon Chicken Ranch pizza with a side of cheese balls

Mike, Brenda and their employees, Eric and Susie, have all put their heart and soul into making this restaurant an oasis for us.  There are so many things I'm going to miss when the restaurant closes, including their famous cheese balls, pork loin sandwiches, house burger and their mouth watering marinara. 

Gud n Free Pork Loin sandwich and fries

Gud n Free World famous (no?  They should be!) cheeseballs

Gud n Free vegetarian Mushroom Falafel

But the biggest things I will miss when Gud n Free closes it's doors is having that safe place where I can go and NOTHING on the menu is off limits to me.  It's a place I can go where I don't have to whip out my laundry list of questions and concerns that I have to go through at every other restaurant that I ever eat at.  I don't have to worry if they are going to understand my needs, because they do - firsthand!  These four people have become very special to this blogger and I feel nothing but friendship and kinship for them.  If you are in the Sioux City area between now and April 28th - stop in to Gud n Free for an excellent meal!  Tell them you heard about their wonderful establishment through their friend, Siouxland Celiac.

This blogger with my mama at Gud n Free on April 13th

I TOLD you that I'm going to miss these cheeseballs!

Also - for those of you in the Sioux City, Iowa area, the April Siouxland Celiac Support Group meeting (no relation to this blogger) will be meeting this coming Wednesday night, April 18th from 5:30 pm - 6:30 pm at Gud n Free.  Tessa, the Gordon Drive Hy-Vee Dietitian who normally facilitates our meetings was not able to plan anything for us in April, so Gud n Free's own, Susie Joens and your's truly are hosting the meeting this month.  We hope to see you there!

Celebration of Life

Today I attended the Celebration of Life for a woman whom I met only once.  Even though we met just one time, she has had a profound affect on my life.  Her name was Michelle Lara.

I met her through my parents at their home many years ago.  She and her family had become very special to my parents.  I know she is one of the many that their hearts came to love as if she were one of their own.  The first thing that comes to my mind about Michelle was when I first met her and her children, Lupe and Larissa.  My parents introduced us and I know she'd heard as much from them about me as I had her.  Her smile was beautiful and genuine and without hesitation, she wrapped her arms around me and enveloped me in a warm hug.  She was easy to talk to and we hit it off immediately.  Her love of life was infectious.  She struck me with not only her big, easy smile, but also her optimism about everything. 

Michelle's life was cut much too short by colon cancer, but in her 48 years, she lived a very full life.  She raised two beautiful children as a single mom, yet also worked on schooling and helping others.  Michelle was a person who wanted to help others so much that she became a nurse.  She was a surgical nurse for 14 years until she suffered a traumatic brain injury in a motorcycle accident in 2009.  The accident happened less than two months after my dad died.  Even though we'd met only once, I felt like I knew her through my mom and dad.  They were so impressed by the loving, kind-hearted, beautiful soul she was.  And so she became very special to me, as well.  We all prayed so much for God's touch on Michelle.  Her faith in Him was strong, but her injuries were great.  She had to have part of her brain removed and she endured paralysis on the left side of her body.  The fact that she survived the accident at all was a miracle.  BUT...she didn't just survive.  Through determination and a "Never say never" attitude that wouldn't let her quit pushing through, she took her life back and she thrived through enormous adversity that would completely defeat most people.  She pushed through years of rehabilitation and dreamt of getting back to helping others.

At a Mercy Me (a Christian band) concert in Sioux City a year or so after her accident, Michelle won a scholarship that was offered that night to Grand Canyon University where she achieved her goals and obtained a Bachelors degree in Nursing and a Master's degree in Nursing Education.  She had recently almost finished her Doctorate in Nursing Education. 

This is a woman who seemed to have everything going against her.  Time and time again today, people who spoke about Michelle talked about how she never complained through all of the hard times.  Yes, she would get frustrated and discouraged at times, but she maintained her optimism and kept that big, beautiful smile on her face and always pushed on, advocating for others and for herself.

Yes, this is a blog about Celiac Disease written by someone living with Celiac Disease.  So, what does this post have to do with Celiac Disease and Celiac Awareness?  Absolutely nothing.  And - absolutely everything.  I started this blog in 2014 after my diagnosis because I want to help others.  I want to advocate for them and for myself.  There have been many times I have gotten discouraged and felt like I have nothing to give.  Am I really helping anyone?  Are the things I want to accomplish really obtainable?  Can I do it?  Do I have what it takes?  So many times I have answered, "No".  I have allowed my insecurities and fear of failure to stop me from moving forward.  Then today as we celebrated the remarkable life lived by this strong, beautiful, loving and amazing woman named Michelle Lara, it dawned on me that anything can be accomplished when we don't give up.  I know that this isn't a new thought, but it is something that can be easier said than done.  We can succeed.  When we don't let our circumstances, obstacles and fears stand in our way.  Michelle squeezed the most out of every moment of her life.  She never quit growing, learning, loving, advocating and taking care of others.  If Michelle can do all of the things she did - and she did it by never quitting, by never saying, "I can't do it" - if she can do the remarkable things she did and accomplish all that she accomplished - we all can.  Michelle's legacy is not only her beautiful children and family, but every person's life that she touched and inspired.  Being reminded again today of all that she was able to do reminded me that I can accomplish the goals I've set for myself by believing in myself, pushing through the obstacles and never saying never.  I can do more with this blog.  I can write my book.  I can successfully advocate for myself and others.  And I am going to continue to do this for as long as the good Lord gives me breath to do so.

Crockpot Jambalaya

Recently a friend from work brought something for lunch that smelled divine!  When she told me that it was crockpot jambalaya and gave me the recipe, I got really excited because it was all gluten free!  The next day my excitement grew because Diane brought a bowl of her jambalaya for me!!!  My work friends get me!  Diane gave me permission to share her flavorful recipe with my followers, so here it is.

Diane's easy crockpot jambalaya

Ingredients:

1 whole sweet yellow onion, sliced

2 stalks of celery, chopped

1/2 yellow bell pepper, chopped

1/2 red bell pepper, chopped

28 oz (2 cans) stewed tomatoes with juice

14 oz Andouille Sausage (or another ring sausage), cut

1/2 tsp Thyme

Tabasco (to taste - or your favorite hot sauce)

12 oz package frozen cooked shrimp

Brown rice (I used a Quinoa & brown rice package)

*Don't forget to make sure that all of your prepackaged, processed ingredients are gluten free.  I look at the ingredients on the package even if the label says it's gluten free because I like to know exactly what is in the food I'm making.*

Place all ingredients other than the shrimp and rice in a 5 quart crockpot on low and stir together.  I added 3 shakes of the Tabasco.  How much you add depends on how spicy you like it.  

Cover and leave cooking for at least 4 hours.  Stir periodically to keep from sticking.  Prepare rice (or quinoa & rice mix) according to the package.  10 minutes before serving, stir in the shrimp to the mixture in the crockpot.  I added mine while still frozen and it cooked beautifully.  When the rice is finished, plate (or bowl) up and top with the crockpot mixture.  More Tabasco can be added if desired.

I love the simplicity as well as the variety of flavors that can all be tasted in this easy meal.  My husband is always a bit wary of new recipes that I make, but he LOVED this!  One bowl wasn't enough.  So, happy cooking and enjoy!  This is a meal that I will make again and again and again!  Thank you again to my friend and co-worker, Diane Worley for this delectable recipe!

And don't forget to check out my fundraiser for charity: water  You can learn more about this organization here.  And you can donate here.

Don't Breathe on Me - You're Sick!

This is me today.  I've been sick since Wednesday.  It's my fault, really.  I got cocky.  My husband had bronchitis a few weeks ago and several of the ladies I work with have had various illnesses over the past few weeks.  Just Tuesday I was saying that I felt pretty fortunate that I hadn't caught any of the yuck that's been going around.  Yep, too cocky!  I should have known better.  Wednesday morning I woke up feeling like crap.  I went to work anyway, but called in Thursday and Friday.  When you live with autoimmune diseases, your immune system is obviously compromised.  So you learn to take extra precautions.

You may laugh, but that picture of The Big Bang Theory's Sheldon Cooper is not far off from the truth!  I know there is a huge debate out there about whether people should get the flu shot or not, so I may not be popular when I state that I DO get the flu shot each year.  I am living with hypothyroidism and Celiac Disease.  My immune system is very compromised.  Chronic fatigue and illness are not strangers to me, unfortunately.  As much as I wish they'd go away and I take precautions to stave them off as much as possible, I still get sick.  I take my probiotic and extra vitamin supplements because I am deficient due to my damaged gut.  I try to stay away from sick people as much as possible, though I'd pretty much have to live in an airtight plastic bubble to truly be able to accomplish that.  My dear husband even slept in the living room when he was the sickest and most contagious with bronchitis.  Although, in large part due to the fact that he couldn't breathe when he was laying down, but he also was very aware of the fact that I could easily catch it from him.

Recently I've been very careful to make sure that I am getting plenty of sleep at night, plenty of fluids during the day, taking my probiotics and vitamin supplements and everything I can think of to try to stay healthy - or a chronically ill person's version of healthy anyway.  But, sometimes, no matter how careful you are and how many precautions you take, it is just going to happen.  You are going to get sick.  That is the thing about living with autoimmune diseases.  You are extra susceptible to everything you come into contact with.  Sometimes, no matter that you've done everything right and everything you can to prevent it, you are still going to get sick.  My illness this week?  A simple, every day, common cold.  Yup!  A little, itty-bitty thing like the common cold has done me in for the past several days.  I have spent the majority of time since I got home from work Wednesday night in bed, sleeping.  Yet, even today, I still feel thoroughly exhausted.  I hadn't showered (EWWWWW) since Tuesday morning - I haven't had the energy to be able to do it.  I finally HAD to do it today!!  While the steam from the hot shower opened my sinuses and the hot water pelting my skin helped ease my body aches, just taking a 5 minute shower completely wiped me out.  I took the shower 2 hours ago and still feel like I need a nap.  It is taking everything in me to sit down and write this blog post.  I began writing it 45 minutes ago and have had to stop many times to try to remember what it was I was going to write.  

When I began writing this blog, I was determined that I would be honest and open with my readers.  That means even when I am feeling crappy.  We all go through times like this and we all go through feeling isolated because of our illnesses.  I share this today not to have people pity me or to garner attention.  I abhor this kind of attention.  I am writing this today so that you know you are NOT alone!  It sucks.  A simple illness that someone without an autoimmune disease may take only a couple of days to get over can take us more than twice as long.  Even when we begin to feel better, our bodies seem to still take forever to fully recover from the last illness and then we're catching something else.  It can feel never-ending at times.  That is frustrating to no end.  And it is difficult for people who don't live with a chronic illness to understand what we are going through or why it takes us so much longer to heal from the same illness that they got over in 24 hours.  We ask for their understanding, patience and compassion toward us.  We need to also exercise patience and understanding with them when they don't get it.  They don't live with what we live with, so they have no way to truly know what we are going through.  We need to patiently educate them as to what we are dealing with.  Don't beat them over the head with information or even expect that they will understand immediately.  Thank them for caring when they ask questions and answer their questions honestly.  When they offer a platitude such as, "Feel better soon." because they don't realize that you go through most of your life feeling like crap, don't scoff at them.  They are being genuine in their limited understanding and knowledge of chronic illness.  Again, let them know you appreciate that they care about you and what you are going through.  It is hard enough finding people who will try to understand and who will be supportive of what we are going through.  We do NOT want to alienate those who are making that attempt even though they may say the wrong thing.  Remember, they are trying.  That is huge.  And that opens the door to being able to educate them, kindly, not treating them as if they don't know anything.  I didn't know anything about Celiac Disease before I was diagnosed.  Not a single thing.  I would have said something ignorant, though it wouldn't have been intended to be.  If we want others to be kind, compassionate and understanding with us, we have to be the same toward them.  We aren't the only ones who get frustrated with the limitations our illnesses put on us.  Those who love and care about us get frustrated, too.  Because they want to spend time with us.  Because they hate seeing us sick.  Because they wish we could do the things we used to be able to do.  

Whatever chronic illness you are living with, you are not alone.  There are many others of us out there who understand and are walking a similar path.  I feel fortunate to have a really strong support system.  And, I feel like living with hypothyroidism and Celiac Disease has made me more compassionate and understanding toward others with chronic illness and just to other people in general.  I hope it has, anyway.  No matter what path we are on in this life, we all want, need and deserve kindness, compassion, understanding and support.

For more information about Celiac Disease visit https://www.beyondceliac.org

To donate my birthday or YOUR birthday to Charity Water visit https://www.charitywater.org