Saturday, November 16, 2019

Product Review: S2 Soaps Ltd

I've always had very sensitive skin.  Many store-bought soaps would make my skin break out in awful rashes, so my mom was always very careful in what she bought to use.  If it caused me to have a reaction, she wouldn't buy it again.  I think we'd hoped that eventually I would outgrow the sensitivities, but, sadly that never happened.  I'm very particular in what soaps I use.  In fact, I haven't actually used store-bought soap for my bath soap in several years.  Previously, I'd bought from a local vendor out of Vermillion, SD who sold their wonderful line of soap products under the name of God's Green Earth at our local farmer's market.  Through visiting with the owners of this line, I was able to gain a couple of new friends, as well.  I liked their products because they used high quality ingredients and no gluten ingredients, which is very important to me.  Marije, the creator of these soaps and lotions, also used her own products for herself and her family, so she stood behind her work.

Autumn Equinox soap by S2 Soaps Ltd
But, alas, they moved to the West Coast and I lost my friend and soap supplier.  Though I did purchase quite a lot from her before they left.  I've been looking for a new soaper ever since, though.  Enter S2 Soaps Ltd, an Etsy Shop created and owned by Kallie Smirnov based in Colorado.  Full disclosure - over the past few years, Kallie has become a very dear friend of mine, though we have only met via the internet.  She, however, does not know that I am writing this review of her products, which I have purchased from her Etsy Shop, nothing was given to me in exchange for a review.  Though she is my friend, I do promise to give a completely honest product review.

Christmas soaps from S2 Soaps Ltd cut and curing.  Scented in crisp juniper.

Whipped soaps from S2 Soaps Ltd

Kallie has quite a line of products available.  Items from bars of soap, bath bombs, travel soap kit, jelly soap, sugar scrubs and more can be ordered from her shop at https://www.etsy.com/shop/S2Soaps  My first order I placed with her, I purchased bars of the 
Life's a Beach, Pink Flamingo and Coffee with goat milk glycerin soaps, as well as the Wanderlust Collection Travel Soap Kit.  I've used the Life's a Beach bar and have now been using the Pink Flamingo bar.  The fragrances are bold and crisp and really help wake me up in the morning.  While I like the scent of the Pink Flamingo bar, I have to say that the Life's a Beach is my favorite so far.  Every time I walked into my bathroom I could smell this lovely, clean fragrance and it had a calming, soothing effect on me.  Each bar is cut thick so they last a long time.

Life's a Beach by S2 Soaps Ltd

Coffee with Goat Milk glycerin soap and Pink Flamingo soap by S2 Soaps LTD
One of the things I hate about store-bought soaps is that so often, they tend to leave a soapy film on your skin that feels like you can never get completely washed off.  Ugh, I absolutely hate that feeling!  With the products from S2 Soaps Ltd, I don't have that.  My skin feels clean and soft after use.  That is saying a lot because of my extra sensitive skin.  While the prices for homemade soap products are more expensive than store-bought soaps, in my opinion, the quality is worth the price.  I know that high quality ingredients have gone into these products and, for me, it is a relief to be able to shower and know that I'm not going to break out in a rash from my soap.

Pink Flamingo soap by S2 Soaps Ltd
On a recent overnight trip I took with my mom to attend a high school musical performed at my old high school, I had my first opportunity to use the Wanderlust Collection Travel Soap Kit.  Yes, hotels most often provide small bars of soap for their guests, and this hotel we stayed at is no exception.  It's always bothered me, though, the waste of the majority of even a small bar of soap.  The majority of the bar of soap gets thrown away.  Not to mention, that I never know if it is a soap that my skin will react badly to.  So, this time I used one of the slivers of soap you get with the travel kit.  It was the perfect size for a single time use!  I had enough for my shower and the small bit that was left wasn't enough to use a second time - minimal waste!  I love that.  I had never heard of this kind of travel soap, but I think it is a great idea.  It worked nicely for me.  The Prospector travel soap that I purchased is an unscented soap by S2 Soaps Ltd.

Prospector unscented single use travel soap in the Wanderlust Collection by S2 Soaps Ltd
I've just recently placed a new order that I am excited to receive.  I'd never heard of jelly soap before, so I decided to try the Jack Frost Jelly Soap this time.  I've also ordered one of the White Tea Pear bath bombs, the Basil Activated Charcoal soap and a bar of the Autumn Equinox soap.  I enjoy that she includes seasonal scents in her product line.  She has new scents coming out soon for Hanukkah and Christmas!  I will add to this review once I receive my next order and use the jelly soap and bath bomb.  

Basil Activated Charcoal soap by S2 Soaps Ltd

White Tea Pear bath bombs by S2 Soaps Ltd
Jack Frost Jelly Soap from S2 Soaps Ltd

Hanukkah soap by S2 Soaps Ltd
I'm very proud of the creativity of my friend and the high quality of her products.  I hope you'll check them out.  In addition to her Etsy Shop link posted earlier in this review, you can also find her on Instagram @s2soaps

11/20/19 I received my latest order from S2 Soaps Ltd today!  I think I like th Autumn Equinox fragrance even more than the Life's a Beach!  Looking forward to using these!!



Sunday, November 10, 2019

Dealing with Flare Ups & What NOT to Say to the Chronically Ill

No matter how careful you are to make sure you avoid gluten and do things to try to be healthy, such as drinking lots of water, taking vitamin supplements and eating healthier, sometimes you still end up having a flare up.  Unfortunately, that is simply the nature of life with autoimmune disorders and chronic illness.  Sometimes there just isn't anything you can do to avoid it, no matter how hard you try.



Many things can affect and trigger a flare up.  Things such as changing seasons, stress, illness such as a cold or the flu, time change, unexpected life changes, etc.

This year has been a very difficult and painful year for me and my family, as we've gone through many large and unwelcome transitions.  Since the beginning of August, we lost my grandmother, then my father-in-law only a month later.  Pressures and changes at work for both my husband and I have brought us not only high stress levels, but uncertainty about our future.  With the onset of Autumn came seasonal colds, flu and other illnesses that we've been exposed to out and about.  So many things can trigger a symptom flare up.  These triggers, as well as the symptoms, can be vastly different in different people.  I'm currently suffering through a flare up.  I haven't been glutened (always my husband's first question) and I have been taking my vitamin supplements (his standard second question), yet I am in the middle of a flare up.  The simplest task leaves me feeling completely physically, mentally and emotionally exhausted.  I have been in the bathroom far too much for comfort over the past couple of days with diarrhea and upset stomach.  My head is pounding and, quite honestly, I can barely keep my eyes open to write this post.  My thoughts feel jumbled and, at times, I struggle to find the right word (I swear it is RIGHT on the tip of my tongue!).  My eczema on my arms and behind my ears is aggravated and I just want to crawl under the covers and not come out until Spring arrives!

How do I deal with a flare up like this one?  I'm so glad you asked!  First, know that there is NO magic cure or quick recovery treatment.  Your body has to take as much time as it needs to get over the flare.  However, there are some things you can do to help your body along and make it a little easier for yourself.


1. Stay hydrated!  I sometimes have a hard time with this one, though it is always something I will stress to other people.  It is so important to stay hydrated!!  It will help you replenish your body and will give you more energy (don't laugh - I can hear you now..."Energy?  What is that?!")  I know that seems like a foreign concept to those who are chronically ill because sometimes just the effort of getting out of bed can take every ounce of energy you may have.  But, staying hydrated will boost your energy level, even if it is just a little bit.  After all, every little bit counts when you have chronic illness.  Hydration also helps to lessen or eliminate muscle cramps and spasms.  When I have a flare up, one of my symptoms that gets worse is muscle spasms in my right arm.  I generally have some every day, but usually they are minor and don't cause me pain.  When I have a flare up, however, the spasms are hard and can really cripple up my arm for a time.


2. Allow your body to rest.  Sometimes it can feel like all you are doing is resting.  My work week gets to be long and by the time the weekend comes around I am usually done in.  It is difficult to accomplish things I need to around the house.  I'm learning that I need to do small tasks and take breaks frequently to help prevent from becoming severely drained and unable to function.  When your body is telling you it needs a break - LISTEN to it and obey!  You are not being lazy, you are simply giving your body what it needs.  I know that sleep can be difficult to come by when you are having a flare up due to insomnia or body aches or multiple trips to the bathroom because of gut issues.  Yes, our bodies require sleep.  It is exceedingly vital.  However, I am talking here about resting.  Sit down, lay down, whatever you need to do to allow your body and mind some down time.  For instance, I am writing this post on my laptop while in bed because I don't even have the energy to sit at my desk.  


3. Eat foods that aid in lowering inflammation.  Some good anti-inflammatory foods are bone broth, fish for Omega-3 fatty acids which can aid many health issues, fruits such as pineapple and blueberries, green tea and even dark chocolate.  I know women everywhere are cheering for that last one!  You can research anti-inflammatory foods online.  A really great and informative post about anti-inflammatory foods can be found here.


4. Take a probiotic and vitamin supplements - research to be sure they are gluten free.  My doctor advised me to take a probiotic that is at least 30 billion live cultures per serving.  In my own research I have found that it is generally advised that someone with chronic illness should take at least 50 billion live cultures or more per serving to get the most benefit from it.  To learn more about probiotics and what they do, check out this article.  My doctor also advised me to take prenatal vitamins, though I am well past the age of being able to get pregnant.  He told me that because I have multiple vitamin deficiencies, a prenatal vitamin would benefit me the most.

Now, for those who are not chronically ill, but have someone in your life who is...please never, ever, EVER say any of the following to that person or anyone who suffers from chronic illness:

5. I wish I could just lay around all day and do nothing.
4. Now that you know what is wrong with your health you shouldn't be getting sick anymore, right?
3. You're lucky.  I'd love to be sick just long enough to lose those few extra pounds I've gained.
2. No one could be sick that much, you must be faking it!
1. But you don't look sick!


On any given day, someone living with chronic illness has to push through the pain, fatigue, brain fog, anxiety and more just to attempt to function as if they were a healthy person.  You have no idea how much energy it takes to pretend NOT to be sick!  Just because we are at work, grocery shopping, doing laundry, attending events, do not mistakenly think that we aren't suffering.  We've just become very adept at keeping our suffering hidden.  We aren't trying to get attention.  It may come as a surprise to you, but we don't enjoy being the center of attention due to our health conditions.  We don't want your pity, your scoffing, your disbelief.  We need your patience, compassion and understanding.  What we are going through is difficult, can be isolating and it is an every day battle.  EVERY. DAY.  It will never go away.  This is our life.  For the rest of our lives.


Saturday, November 2, 2019

Surviving the Holidays When You are Gluten Free

It is a very brisk Autumn day here in Iowa.  With the arrival of November, the holiday season is fast approaching.  It seems that especially this time of year can get very discouraging and frustrating for those of us who have to be gluten free due to Celiac Disease or other health issues that require a gluten free lifestyle.  Here are some ways I have found to survive the holidays being gluten free.  (read all the way to the end for the Giveaway Winner announcement!)


Just because we are gluten free doesn't mean we can't enjoy ourselves along with our family, friends and co-workers at holiday get-togethers and events!  One thing I learned during my first holiday season after my Celiac diagnosis is not to expect others to cater to my dietary needs.  It isn't fair to them and you will only be disappointed and probably end up sick.  I try really hard not to call attention to my being gluten free other than when I have to.  I have never enjoyed being the focus of attention and this is no exception.  My sister-in-law, having the most space in her home, always graciously hosts the family gatherings for Thanksgiving and Christmas.  We do it potluck style, with everyone bringing something for the meal.  At Thanksgiving, I completely prepare an entire Thanksgiving meal for myself at home, including the turkey (even with meat, you have to watch to see if anything was added to make sure it is safe for consumption when you have to be gluten free).  Yes, my sister-in-law and her husband usually make a turkey, but I don't mind making my own, as well.  I can control what I am getting and I know exactly what has been used in preparing it and my husband and I have left-overs that we wouldn't if I didn't make my own.  My sister-in-law usually provides potatoes, so I don't make those, though I do make my own gluten free gravy and stuffing at home and take just what I need for myself.  Actually, I end up taking a little bit more, as well, because my mom likes to try the gluten free foods I make, even though she doesn't have to be gluten free.  I always try to make a gluten free desert to share with everyone there and on Black Friday - otherwise known as Iowa Hawkeye Game Day to our family, I always bring a snack that everyone can enjoy (including me).  A favorite that is requested of me each year is my spinach, artichoke dip.  Yum!  The nice thing about making my own meal that is safe for me to eat is that, anymore, it is just commonplace and no one thinks anything of it.  I am not the center of attention because of my limitations and I get to enjoy delicious, gluten free foods that I know are perfectly safe.


On my dad's side of the family, there are quite a few of us living with Celiac Disease or non-Celiac Gluten Sensitivity, so there are always plenty of delicious gluten free options at these family gatherings!  And, we don't have to worry about cross-contact because everything is labeled with separate utensils and kept away from the gluten-full foods.  While it is sad that so many of us have to avoid gluten on this side of the family, it also feels like I can just enjoy a normal family gathering because I'm not alone.


There are many things you can do to be safe and yet still be a part of the festivities.  Eating ahead of time can help and then just enjoy a glass of wine or a hot cider and good conversation with everyone else at the event, or bring your own food.  The first couple of years after my diagnosis I found kind of depressing as I focused on all of the things I couldn't have instead of focusing on just being with family and friends and enjoying the moment.  Concentrate on the joy and fun of the event and don't let what you can't have get you down.  Be thankful that you know what has caused your health issues and that you are in control as much as you can be.  

At any event where you bring your own food or, if catered and the caterer will provide a gluten free meal for you, there may be some people who ask you questions about your health and about being gluten free.  I've learned to give short, but accurate answers to these questions unless someone really is interested in learning more about Celiac Disease and being gluten free.  Many people, while curious, don't want to know the entire history of gluten, Celiac Disease, etc.  Most are asking to be polite.  Generally, I try to give a short answer and then turn the topic of conversation to something else that everyone can participate in.  That way, I'm not on the spot and the conversation doesn't become all about me and my health issues.  I want to enjoy the festivities as much as the next person.

The holidays can be very intimidating and isolating if you let them.  For me, being able to prepare and take my own food to get-togethers cuts out the intimidation factor and keeps me from being isolated.  I can say yes and attend and be a part of the event and know that I am safe because I've prepared my own meal.  Even though most holiday events center around food, remember that there is so much more to enjoy about life than just the food!  After all, the best things in life are free (gluten free, that is!).  Take a moment this holiday season to really notice and appreciate all of the naturally gluten free things in your life.  Some of my favorites are the sound of children laughing, joyful holiday music, the colorful Autumn leaves, warm sweaters, snuggling with my favorite someone - there are so many beautiful things in this life that have nothing to do with food, but are naturally gluten free.  Enjoy them this holiday season!


Now for the winner of the Autumn Giveaway co-sponsored with my friend, Kallie at S2 Soaps...



ANDREA KESSLER @skessler28
Congratulations, Andrea!!



Saturday, October 26, 2019

Recipe: Grandma's Peach Cobbler

When I was a little girl my favorite dessert was my Grandma Orris's peach cobbler.  Truth be told, it remains my favorite dessert!  Flaky pie crust on top of sweet, tender peach slices - this is my ultimate comfort food.  Not only does it taste wonderful, but it transports me back to my childhood and happy memories with my grandma and then my mom, who also made this recipe a lot through the years.

💚🎉 Read all the way down for a special Giveaway contest!🎉💚

Since my Celiac diagnosis and going gluten free I've learned to adjust many of my favorite recipes from gluteny to gluten free by substituting, often just one ingredient.  There are many great cup for cup gluten free flour blends out there that you can use.  I'm fortunate to have some of my friend, Tina's flour blend from her former brand, Better For You Bakery still in my freezer.  While this brand is no longer available, there are many other baking and all-purpose gluten free flour blends out there that work well.  Any of them could be used for this recipe.  It is a simple recipe with tasty results.


Gluten Free Peach Cobbler

Ingredients:

Filling:
2 cans or  jars of sliced peaches in natural juice (Grandma's recipe used the cans with syrup)

Cobbler:
2 C gluten free all purpose or baking flour blend (use a cup for cup brand)
1 tsp salt
2/3 C + 2 T shortening (solid coconut oil would work well for this, also)
1/4 C water
Sugar or Splenda

Mix gf flour blend and salt in a medium sized mixing bowl.  Cut in shortening.  Add water, 1 T at a time, mixing with fork until flour is moistened.  Add sugar or Splenda to taste to sweeten slightly.  Take dough and pat into approx. 2 inch round patties and approx. 3/4 inch thick.  Place peaches along with the juice in a 9 x 13 baking dish, evenly distributed.  Top peaches with the cobbler patties.  Cobbler recipe can be doubled if more of the cobbler is desired.  Bake at 350° until cobbler is golden brown on top, approximately 35 - 40 minutes.  Check if cobbler is baked through by poking with a toothpick.  Toothpick should come out clean.  Cooking time depends on how thick the cobbler patties are.  Serve warm topped with your favorite ice cream, whipped topping or just as is.

Gluten Free Flour Blends:

This is one of my all-time favorite recipes and I'm so happy to be able to share it with you.  It is a great recipe for fall.  To kick it up a notch, you could add a pinch of cardamom in the cobbler dough or maybe a bit of nutmeg to the peaches to really give it an Autumn taste.

I'm teaming up with my friend, Kallie at S2Soaps for a special Fall giveaway!






🎉🎉To enter this giveaway:🎉🎉

1. Follow @siouxlandceliac AND @s2soaps on Instagram
2. Like the post about this blog and giveaway on Instagram
3. Tag a friend

**Only those in the continental USA are eligible to enter.  Unlimited entries.  Each tagged friend counts as a separate entry.  All entries must be submitted no later than midnight November 1st. Winner will be announced with my November 2nd blog post.** 

Saturday, October 19, 2019

Product Review: Heartland Gourmet brand Funnel Cake Mix

My mom and the daughter of a friend who was visiting from college at the Clay County Fair in Spencer, Iowa
When I was growing up in Northwest Iowa, county fair time was one of my favorite times of the year.  My hometown of Spencer, Iowa is the home of the renowned Clay County Fair, also known as “The World’s Greatest County Fair”.  So many fun rides, interesting vendors, concerts and, of course, fair food!  Attending the fair each year, my favorite fair treats were Tom Thumb Donuts and funnel cakes!  Who could resist the sugary fragrance that called to you from across the fairgrounds and pulled you to their kiosks to purchase the warm, doughy bites of heaven?


Tom Thumb Donuts at the Fair
Just a few months before I finally got my diagnosis of Celiac Disease, my mom and I attended the fair, which always falls around her birthday.  We went to the concert that night, which included a hometown boy, Casey Muessigmann who appeared on Season 3 of tv’s The Voice.  Casey is also the son of a high school classmate of mine, which made the show that much more fun.  The headliner was Scotty McCreery, whom my mom and I had enjoyed watching and rooting for on tv’s American Idol.  When we arrived at the fairgrounds, our first stop was at the Tom Thumb Donut kiosk to purchase a couple of bags of the mini donuts to munch on while we walked around the fair.  We purchased two more bags before the show and then after the show we ran into a couple of high school classmates and friends of mine, who told us that the kiosk was actually still open.  So, we purchased two more bags before heading to our hotel room.  Neither of us have over-indulged like that before, but when I got my Celiac diagnosis a few months later and realized that was the last time I would ever be able to enjoy one of my favorite treats I didn’t feel so bad about that particular over-indulgence.  We stopped by the fair the next day before heading home and split a large funnel cake with whipped cream and strawberries.

For nearly 6 years I thought that I would never get to experience either of these special treats again.  Then I found a gluten free funnel cake mix made by Heartland Gourmet.  This is a local company based out of Lincoln, NE that offers a variety of mixes, including organic mixes and gluten free mixes.  And I LOVE to support and promote local companies that do gluten free right!  To start out, let me tell you that this is not a sponsored review.  These are products that I have purchased with my own money, so I didn’t receive any free product or any other compensation in exchange for my review, though I have done that in the past and probably will again in the future.  This, however, is not sponsored content. 


I have used many of the Heartland Gourmet mixes, including their cornbread, red velvet and
carrot cake mixes.  None of them have disappointed, so I assumed that my experience with the funnel cake mix would be the same.  The mix couldn’t be any easier to prepare.  All you need to add to it is 2 cups of water.  Heat 2 cups of canola oil in a deep pan, I used a pasta pot that I had to prevent splattering and it worked just fine.  Now, I have never made funnel cake before, so mine didn’t turn out pretty.  The only funnel I had on hand was too small to be useful and the pastry bag I had was an inexpensive one that didn’t work out very well, either, so I did a makeshift “funnel” and put the batter in a plastic sandwich bag and cut a hole in one corner to squeeze it out into the oil.  I didn’t do a very good job with shaping it, but in my defense, again, this was my first time.  The entire process, though messy because I didn’t have the right tools, was easy and fun.  My mom was there helping me with it because she loves funnel cake and, though she doesn’t have Celiac Disease and isn’t gluten free, she enjoys trying my gluten free cooking and baking.  And, I wanted to have the opinion of someone who doesn’t have to be gluten free, as well as my own.  


The texture and flavor of the funnel cake was just how I remembered regular funnel cake tasting like.  It was light and just the right amount of doughy in the center.  I think you could even use this batter to make mini donuts and they would not disappoint, either!  My non-gluten free mom and hubby both liked it.  My mom said she thought it tasted even better than funnel cake at the fair!  My husband, Dave, had never had funnel cake before.  Really!  I know - shocking, right?!  He tried it and asked if there was more, which is a very good sign!

Heartland Gourmet is a family operated business in Lincoln, Nebraska.  As stated before, they offer many mix options, including organic mixes and gluten free mixes.  According to their website, they’ve also just teamed up with Gluten Free Mama and have added her line of gluten free products to their company.  I’ve used many Gluten Free Mama products in the past few years, as well and can speak to the high quality of those products. 


If you are in the Sioux City, Iowa area, the Hy Vee on Gordon Drive sells Heartland Gourmet gluten free mixes in their Health Market section.  The mix prices are comparable to other gluten free mixes also sold there and the quality of these mixes is worth every penny.  I dare anyone, gluten free or not, to be able to taste the difference between the Heartland Gourmet gluten free products and their non-gluten free counterparts.  If you can’t find their mixes in a grocery store near you, you can order directly from their website here.



Until next week, happy baking!

Saturday, October 12, 2019

Things You Should Know if You Think You Have Celiac Disease


Getting a correct diagnosis for Celiac Disease is too often a challenge and can take several years before you finally get the right diagnosis.  It took my doctor nearly three years of testing, trying different treatments and then me almost dying because my worst symptoms became so severe.  There are over 300 known possible symptoms of Celiac Disease and they are not all just gut related.  In fact, most of them are not.  Even with gut related symptoms, doctors often misdiagnose patients with IBS or other gut related disorders.  Celiac Disease is most often the last thing doctors will check for as a “last resort” like my doctor did.  They don’t consider this right away in most cases.  For a symptom checklist to see if you should be tested for Celiac Disease, you can visit https://www.beyondceliac.org/celiac-disease/symptoms-checklist/.  Although this checklist gives only the most common symptoms.  For a complete listing of the possible symptoms of Celiac Disease you’ll also want to check out this listing at https://onedishcuisine.wordpress.com/2015/03/19/300-signs-and-symptoms-of-celiac-disease-adults-and-children/.  

Out of the listing of 300 possible symptoms, I have chronically suffered with 74 of these throughout my lifetime.  I can just about pinpoint when many of the symptoms began.  If you have many of the symptoms on either of these lists, don’t wait for your doctor to suggest testing for Celiac Disease.  Ask your doctor to test you.  If your doctor, as in many cases, unfortunately, says they don’t think that is it without even bothering to test you, find a different doctor!  Find one who WILL take you seriously and test you for Celiac Disease.

If you have symptoms from either of the above lists and also have a relative, especially a first degree relative, who has been diagnosed with Celiac Disease, you need to be tested.  Be sure to tell your doctor that you have family members who have been diagnosed and their relation to you.  People who have a first degree relative diagnosed, which would be a parent, sibling or child, are at higher risk for Celiac Disease.  If you believe that you have Celiac do NOT take no for an answer. 

If bloodwork comes back positive for Celiac Disease – and this is extremely important – do NOT go gluten free until after you’ve had a confirming endoscopy!  This not only confirms diagnosis, but can give you an idea of how much damage there is.  The more you know, the better armed you are to be able to take your health back.  So, the first question to ask your doctor upon a positive blood test for Celiac is to refer you to a gastroenterologist for an endoscopy.  When I was diagnosed, I asked if there were any other tests or follow up that I needed and I was told, no.  I never had the confirming endoscopy.  I had been gluten free for five or six months before I found out that I should have had that done.  By then, I’d had so many of my symptoms begin to go away and I knew that gluten had almost killed me before my diagnosis, so I chose at that time not to go back on gluten for the six to eight weeks that I would have to in order to have accurate results with an endoscopy.  I have since been seen by a gastroenterologist, earlier this year, in fact, who spoke with me about my diagnosis in depth.  Even though I hadn’t had the endoscopy, based on my medical history, symptoms and the improvements to my symptoms, he confirmed that I definitely have Celiac Disease.  I also had genetic testing done this year that showed that I have both of the Celiac genes, which further confirmed my diagnosis.

Once you have the confirming endoscopy, ask to be referred to a dietitian who knows about Celiac Disease and understands the realities of being gluten free.  I was fully on my own after my diagnosis.  My doctor knew enough to do the blood tests, but couldn’t give me any information about my disease or even what gluten was beyond telling me that I would have to “give up bread, pasta and stuff like that”.  That was the extent of my doctor’s medical advice and treatment for my Celiac Disease.  I always recommend to anyone newly diagnosed that they consult a dietitian about putting together a game plan for learning how to be gluten free.  Meeting with a dietitian will also help you go gluten free in a healthier way, avoiding many pitfalls that too often the newly diagnosed fall into.  By pitfalls I mean, seeking out gluten free alternatives to the “junk” food you’ve grown to enjoy and indulge in.  Fresh, naturally gluten free foods are much healthier for you.  And, in the beginning, for however long it may take (everyone is different) your body will be in healing mode.  You want to eat foods that will be gentle on your system and aid in healing.

Finding a local support system is also vital to helping you adjust to your new reality.  Many dietitians may know of area Celiac support groups.  It helps in so many ways to get plugged into a group of other people who are going through a similar journey to your own.  I had been living gluten free for over two years when I accidentally stumbled onto our local Celiac Support Group.  I searched the internet for a group when I was first diagnosed, but I never found anything.  It was not well advertised.  Eventually, after losing one and then another group facilitator and sponsor, last year I became the facilitator and sponsor of the group, myself.  Being able to share my experiences and listen to other people talk about theirs makes me feel less isolated and gives me hope, a sounding board, a place to exchange ideas and recipes, to talk about gluten free products we’ve found that are good – or bad, etc.  The people in my group have become very dear friends.  I know that, when no one else understands what I am going through, these people do.  There are also some great online Celiac and gluten free communities that can be very helpful.

To learn more about Celiac Disease, living gluten free and learning healthier living, here are some good sites and a blog that I recommend:


Saturday, October 5, 2019

Learning Self-Care to Enjoy a Better Life


When I first heard the term “self-care” many years ago, it didn’t quite compute.  If you’re like me, when I was growing up, I was taught to take care of others before my own needs.  It is something that is completely engrained in me and is second nature after more than 50 years of being alive.  I’ve always worked hard to follow that in my own life, sometimes to my own detriment.  I’ve always believed, wrongfully so, that my own needs are always secondary and if I am taking care of myself, I am being selfish.  Just like everything else in life, this area requires balance.  That balance has been and often, still is difficult for me to find.  Yet, self-care is so vitally important to our well-being.  I mean, if you don’t take care of yourself, how can you possibly take care of anyone else?

Anyone who has ever flown has sat through the instructions from the flight attendants prior to take off.  One of the most important instructions they always give is about the oxygen masks that will pop down from the overhead compartment in case of loss of cabin pressure.  What is it they always, without fail instruct the passengers to do?  Put the mask on YOURSELF before helping any small children or incapacitated person near you.  That is because if you lose consciousness, you are incapable of coming to someone else’s aid.  In other words, if you don’t take care of yourself first, not only will you suffer, but so will those around you.  Self-care is important to everyone, but especially those of us living with autoimmune disorders and chronic health issues.  Our bodies require more self-care than most in order to be able to function at any given time.

So, what does self-care look like?  I imagine it can mean many different things to many different people.  Here are some things I’ve learned about self-care along my own journey.

1.      Learn and abide by your limitations



That doesn’t mean, let your limitations keep you from living your life as fully as you can or to use your limitations as excuses to keep from doing things.  It just means that we need to listen to our bodies.  No one else knows your body like you do.  You know what activities require extra energy from you and what activities wear you down.  In my own case, I have learned that I cannot plan multiple activities for the same day or even just one all-day activity.  My body rebels against me when I expect too much from it.  I need to honor that by planning accordingly and resting when necessary.  Yep, it means that often I have to say no to activities and events that I would LOVE to take part in.  But sometimes self-care simply means saying no.  It is ok to say no.  It is not the end of the world.  And it doesn’t mean that you always have to say no.  If I say no to things that I know will prove to be too much for my body to handle, that opens up opportunities for me to say yes to other things I may not have been able to do before.

2.      Get plenty of rest




All of us need rest.  Those of us with chronic illness or autoimmune disorders require more than normal.  Honor that.  Yes, we need to get plenty of sleep at night.  Each person’s needs may be different on how much their body actually requires versus someone else’s needs.  Sleep is not the only form of resting.  Down time, just kicking back with no activities and taking time to relax for a while helps to recharge your body, as well.  My favorite way to relax is to grab a cup of hot tea and a good book and just lounge and read.  I have so many people tell me that they don’t have time to do sit and read.  I understand that.  The busyness of life gets to us all at times.  This is an area of your life where you need to make time.  Carve out in your schedule a little bit of “me” time to sit and relax and rest your body and mind for a little while. 

3.      Hydration & healthy eating habits




Again, this is a vital part of life.  I have a bad habit of drinking one soda per day.  I love the carbonation.  But even one per day is so unhealthy for my body.  And, I’ve begun to notice different things about my body when I drink soda instead of water.  I get more muscle cramps, my joints feel swollen and achy, I end up feeling sluggish and fatigued throughout the day.  When I am drinking plenty of water, I have found that I have more energy, I feel more focused throughout the day and the muscle cramps and swollen and achy joints are no longer an issue.  Making healthy choices for our meals is exceedingly important as well.  I love the summer and all of the fresh fruits, veggies and herbs I can purchase at the local farmer’s market!  When I was first diagnosed, my first response as I was learning to live gluten free was to purchase and consume the gluten free counterparts to what I used to enjoy prior to my Celiac diagnosis.  Sadly, most of that was crap!  The more processed the foods are, the less good they do for your body.  The more you can stick with less processed, more naturally gluten free foods, the better off you will be.  You will feel more energetic and be healthier overall.

4.      Spiritual health

My current personal Bible study is,  "Beautiful Brokenness "

I know this can take many different forms for many different people.  We are, at our core, spiritual beings.  For me, being a part of a church family helps me find my purpose, my joy.  I work as part of the worship and service team most Sundays and I love it!  It has grown me so much as a person to be a part of this great team and to be an active member of this church family.  My time on Sundays as well as the small group Bible study that I help facilitate really help me rejuvenate for each week.  The times that I have to miss for one reason or another, I can feel it down deep in my soul and I feel emptier and miss it so much.  Being plugged in to this church family feeds my spirit in ways nothing else I have found ever has.  Taking time during the week for my own personal prayer time and Bible study just adds to that fullness.  I have dear friends who take care of their spiritual health through yoga and meditation.  Others I know actually feed their spiritual beings through their art.  Whatever form it may take, setting aside time to care for your spiritual self is also very important

5.      Make time to do activities you enjoy
One of my favorite passions and hobbies, photography. 
This photo is two things that relax me, crocheting and snuggling with my kitties. 
This past year has not been a good one for me and my family.  While there have been some very good and enjoyable things about the year, there have been a lot of hardships and some big, painful losses that have really disrupted our world.  For most of the year, the activities that have always given me pleasure have taken a backseat and been set aside.  Some of these activities help keep me centered.  Since I was a young girl I have found release through art and writing.  Even if the only person who will ever see my drawings or paintings or read what I’ve written is me, it is still a way for me to get in touch with my innermost being.  I also enjoy photography.  We have to make time for the things we enjoy as well as those responsibilities we all have.  We aren’t meant to go through life just doing a job.  Yes, we need to work in order to make money to be able to pay for the necessities and extras, but we need to find hobbies that we enjoy, too.

6.       Take time for something silly and fun once in a while



Me with my cousins, Amy & Lori Ann taking some time for fun and just being together a couple of days after our grandma's funeral. 
At our last meeting of the Western Iowa Celiac & Gluten Free Living group, I passed out some little gifts.  Inside each pouch was a small notebook, a pen, a trinket reminding each person to never give up and a small bottle of blowing bubbles.  Yes, the bubbles may seem silly, but it symbolizes to me the simple joys we tend to forget about and set aside as adults.  I, personally, have fun blowing bubbles.  It requires very little from you and you can’t help but laugh and smile while you are doing it.  I’ve found that doing something fun helps ease away the tension and stresses of life.



Is anyone wondering what the small notebooks and pens in the pouches were for?  They were for each person to write down ideas in their own lives for how they can practice self-care.  So, now that you know what self-care looks like to me, tell me how you practice self-care in your own life.

Until next week, be well and be happy.